cipa

 


 

Dear Parents,


 

This is know your opinion, as we are shortly planning to have a Grand Meet and the issues which needs our attention are,

1.      AB recalled its product and the parents whose children have been ex-implanted are waiting for replacement?
 

2.      Nucleus has closed its office in Delhi and is operating from Mumbai (its creating big problem),
 

3.      N-5 implant recall issue,
 

4.      Freedom processor malfunction issue,
 

5.   Nucleus 3 G of RR Hospital issue,
 

6.     Therapy centers are asked to buy loaner and other accessories, (Cochlear) we both parents as well as centers needs to join hands to counter a purely commercial approach of the company.
 

7.       I wish to invite all the centers to suggest how can we work together to improve Implant Companies services and approach towards centers as well patient.


 

I propose a bigger venue this time and the schedule date be 2nd Sunday ie 9th October 2011. Your valuable comments and suggestions are invited by 18thSeptember.

Parent Society Sponsors Hearing (Cochlear Implant) in association with Swar Clinic Pitam Pura to two children Tushar and Tanya with your support. Thanks to all the donors for donating for the noble cause.

Tushar Can Hear Now

Tushar and Tanya

 

Donation Request

This is to request that two children need our support as they are candidate for cochlear implant and there financial position is very poor. We are falling short by 3.5 lacs for the surgical procedure to be carried out. We hereby request all to kindly come forward and donate generously for the noble cause and change the life of young ones. The date for implant is likely to be finalized by mid of next week.

Kindly donate at the below mentioned account.

Bank: State bank of India
A/c No : 30082226281,
Favor: Cochlear implant parents society

 

Music class may benefit kids with cochlear implants

Wed Mar 10, 2010 2:10pm EST

NEW YORK (Reuters Health) - Music class may help improve certain types of sound perception in deaf children who have cochlear implants, a new study hints.

Cochlear implants are small electronic devices that can give a sense of sound to people who are deaf or severely hard-of-hearing, helping them to understand speech and other sounds in their environment. The implants work by bypassing the damaged portions of the inner ear and directly stimulating the auditory nerve.

Coupled with intensive post-implantation therapy, the implants can also help young deaf children learn to speak and understand language.

However, it is difficult for these children to enjoy music, according to the researchers on the new study, led by Dr. Joshua Kuang-Chao Chen of Cheng Hsin General Hospital in Taipei, Taiwan.

For their study, the researchers assessed 27 children with cochlear implants for their ability to discern musical pitch -- how high or low a musical note is. Thirteen of the children had attended standard music classes at the Yamaha Music School, which has centers around the world.

Overall, Chen's team found, the longer the children had taken music classes, the better their pitch perception.

The study, which is published in the journal Pediatrics, was not a clinical trial testing the effects of musical training on children with cochlear implants. So it does not prove that music classes can fine-tune sound perception in these children.

But the findings are in line with a past study that found that cochlear implant recipients who were assigned to musical training showed an improved ability to perceive musical timbre, or quality. Those study participants, however, had become deaf after they had learned to speak.

The current study, according to Chen and his colleagues, appears to be the first linking music classes to better music perception in children who became deaf before acquiring language.

It is important that children with cochlear implants learn to appreciate music, in part, because music and singing are a routine part of school, noted Dr. Lieber Po-Hung Li, another researcher on the study.

"The ultimate goal of the cochlear implantation is to help hearing-impaired children go back to the mainstream school," Li told Reuters Health in an email.

In addition, a better perception of musical pitch, timbre and other qualities might help children with cochlear implants more generally.

"Since music can be the most complicated style of sound in the world," Li said, "improvements of pitch perception surely will not only affect their experience of music, but their perceptions of other types of sound as well."

The findings are based on 27 children ages 5 to 14 who had received cochlear implants for congenital or early-life deafness. The 13 with musical training had attended classes for anywhere from two months to three years.

The researchers tested the children's pitch perception by having them listen to pairs of piano tones, then state whether the second tone was the same as or higher or lower than the first.

The children's correct response rate ranged anywhere from 9.5 percent to 92.5 percent, according to the researchers. Fifteen of the 27 were correct at least half of the time.

Overall, the longer a child had had musical training, the better his or her pitch perception. One child with 20 months of training, for example, achieved the high score of 92.5 percent. Another child with three months of training was correct in pitch perception 56 percent of the time.

Some children with no music training also performed well. One, for example, was correct 89 percent of the time.

Still, Li said, the fact that the duration of musical training correlated with pitch perception suggests that a structured music program should be incorporated into children's therapy after they receive a cochlear implant.

And earlier training might be better, the researcher noted. In this study, the relationship between musical training and pitch perception was stronger among the 18 children who were age 6 or younger.

SOURCE: Pediatrics, April 2010.

 

HEARING AID DONATION

Mr.Akhil (Area Manager) of Starkey hearing aid company, is donating hearing aids on 
1-2-3 of November at Hotel Hayat, New Delhi. His mobile number  is 09839225218.

 

 

Minutes of April Meet

The meeting of Cochlear Implant Parents Society was held on 5th April at Shudh Restaurant, it was for the first time noticed that most of the members were on time, we appreciate for their punctuality and expect same in future.


Many issues were discussed and top of them were,

1. Meeting schedule for the whole year

A) Meetings to be held during the year was reorganized and first Sunday 9.30 am of under mentioned month were restructured which will be followed religiously henceforth,

i) January, April, July, September, November.

2. “UTSAAV 2009”, is due this year so a team was constituted to look after the progress and to liaison with the centers for a better event, the team consists of following members,
Mrs Guglani, Mrs Jain, Mrs Ritu, Mrs Nidhi.

3. Evaluation was done of our objective and it was found that a lot is to be done for the children who are to be implanted and also the children who are implanted and are not benefited for any reason. It was decided that parents will approach their corresponding hospitals and Therapy Centers to obtain list of the children who were implanted so that we may approach them to integrate among us and resolve their issues (if any) and make them walk in main stream.

4. Members were asked to be more connected through our site and at the same time mail about the links or content to be added and integrated in the website to Mr Rajeev Guglani at rkguglani@gmail.com.

5. Dr. J.M.Hans was invited and he informed us about his technique of surgery. He also informed how important it is to use hearing aid in the un-implanted ear as it keeps the nerve and the portion of brain alive for future use.

6. To make our UTSAAV a grand event funds will be arranged from the implant companies, we appreciate them for supporting us previously but as the event this year will of much bigger so a better support was desired.

7. Parents suggested to have a informal picnic meet (water park) after 10th of May. An option of tour to Shimla (3-5 days) is also explored, we are working on it and will update of the same shortly
 

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Important Resources

http://www.cochlear.com

http://www.bionicear.com

http://www.medel.com

http://www.neurelec.com

www.johntracyclinic.org/

www.evdcweb.org
(Resource for AVT Therapy)

Important Links

1.
Income Tax Benefits to Parents & Persons with Disability

2.
Special Allowance for Child Care, Women with Disabilities and Education Allowance for Disabled Children of Government Employees

3.
Special Education Allowance for Children with disabilities in 6th Pay Commission

4. Exemption to Study One Language

5.CGHS circular meant for latest ruling on cochlear implant

6.CBSE circular to Schools for children with special needs

7. Insurance Form for Sound Processor

 

 

 

 
 
 
 

 

 

 

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